Our privacy policy

GenesisCare UK is a trading name of Genesis Cancer Care UK Limited. We are a specialist, provider of cancer care diagnostic and treatment services in the UK. Our company registration is 05796994 and our registered office is Wilson House, Waterberry Drive, Waterlooville, Hampshire, PO7 7XX. GenesisCare is registered with the Information Commissioners Office, registration number Z9493925.

This privacy notice applies to anyone who asks about, buys or uses our services in any way (for example, by email, through our website, or by telephone). We take privacy seriously and we want you as our service user, to understand the information we collect about you, how we process and protect the personal information which we collect about you, from you and from third parties, so that you can be confident that the information is being used safely and in ways that are reasonably expected, and what rights you have in respect of your personal information.

When we refer to ‘we’, ‘us’ and ‘our’, means GenesisCare UK.

Your contact details we collect are; telephone contact details, in order that we can call you, text or leave a message, postal and email addresses, so that we can send you invoicing information where relevant and which we may use to send confidential health information unless you have told us not to.

We will ask that you to provide your payment card details in order to fund your treatment where you are self –funding or to cover costs in the event of a shortfall of funds from insurers.

We will ask you for details of an emergency contact, with whom we can share information about the progress of your treatment and contact in the event of an emergency. By providing emergency contact details, you are giving us permission to keep him or her informed. It is your responsibility to notify us of any change to these emergency contact details so that we can ensure they are kept up-to-date and accurate. Where you provide us with information about other people, you must make sure that they have seen a copy of this privacy notice and are comfortable with you giving us their information.

CCTV recording is in use at some GenesisCare UK locations, this is used to ensure the security of property and premises and for preventing and investigating crime purposes only. Areas monitored by CCTV are sign-posted. The information processed can include visual images, personal appearances and behaviour. Where necessary or required, this information is shared with you, employees and agents, services providers, police forces, security organisations and persons making an enquiry.

We may also collect more sensitive information about you such as about your current or previous health, your sex life or sexual orientation, your religion, race or ethnicity and genetic information relating to you. This may also include details of healthcare services provided previously by GenesisCare UK or by other healthcare providers and include details of any medication you have been prescribed. In this Privacy Notice, we refer to this sort of information as special categories information.

Access to and use of information concerning your physical or mental health is strictly controlled in order to ensure compliance with applicable data protection law and adherence to medical confidentiality guidance issued from time to time.

In many cases we pseudonymise or anonymise your information before we share it with others, or where we no longer require the information in identifiable form.

Anonymisation is the process of turning data into a form which does not identify individuals and where identification is not likely to take place.

Pseudonymisation is the processing of information in such a way that it can no longer be attributed to you without the use of additional information and where that additional information is kept separately. This allows for a much wider use of the information for statistical or other purposes.

Directly from you

Information may be collected directly from you to support your direct care and treatment, this information can be collected when:

You register for your provision of healthcare with GenesisCare UK
You use our services
You complete enquiry forms on GenesisCare UK websites
You submit a query to us including through our website, by email or by social media
You correspond with us by letter, email, telephone (calls from/to patients may be recorded for the purposes of staff training, customer service development and quality improvement) or social media, including where you reference GenesisCare UK in a public social media post
You take part in our marketing activities
From other healthcare providers

In order to provide you with the best possible care, we collect personal information about you from other providers. These can include:

We may collect information about you from third parties when:

We use your information for a number of purposes. Whenever we use your information, we must have a legal justification under data protection law for its use. The legal justification will depend on the purpose for which we intend using your information.

Our legal justification for processing your Personal Data generally falls into the below categories below:

Necessary for you to receive healthcare services

Necessary to fulfil our contract with you for the provision of care and treatment
Necessary to comply with the law – This applies where we have a legal or regulatory obligation to use your personal information
Necessary for our Legitimate Interests – This means where our business interests justify us using your information and that business need does not impact unjustly on your rights as an individual
Necessary to establish, exercise or defend legal claims
You have provided your consent to our use of your personal information

You will find details of our legal justification for each of our processing purposes below. We have set out individually those purposes for which we will use your personal information, and under each one we set out the legal justifications which allow us to do so. As well as setting out a legal justification, we also explain an additional lawful condition for use of special categories of personal information.

Failure to provide your information further to a contractual requirement with us or a consultant may mean that we are unable to set you up as a patient or facilitate the provision of your healthcare on GenesisCare UK’s systems.

It is important that you understand that we may share your information with others. We may share your personal information within our group of companies and with third parties.

Sharing within the GenesisCare group

We may share your personal information within the GenesisCare group of companies.

Sharing with your medical consultant

As a GenesisCare UK patient, your treatment may be provided by a medical consultant. Medical consultants who provide you with care are required by law to maintain records about your health and any treatment or care you have received. They also make decisions about what information is collected about you, and may maintain their own set of medical records in relation to the treatment that they provide as well as sharing the records relating to your care and treatment that GenesisCare UK maintains. Consultants control this information which means they must individually comply with the data protection legislation and relevant guidance when handling your personal information and should therefore also make available to you their own privacy notice. In respect of your direct health care and treatment received through GenesisCare UK, GenesisCare UK jointly controls your information with your consultant. This means that as joint controllers, together we determine the means and purpose of processing your information for your care and treatment.

Consultants who work with GenesisCare UK (including their medical secretaries) are expected to handle your personal data in accordance with the principles set out within this Privacy Notice. This means that whenever they use your personal data, they will do so as set out in this Privacy Notice. In addition, GenesisCare and Consultants are required to adhere to the Joint Patient Data Sharing and Management Policy which we can provide to you upon request.

Consultants working with GenesisCare UK (including their medical secretaries) may process your personal information at a non-GenesisCare UK site.

If you want to find out more about the arrangements between GenesisCare UK and consultants for handling your information please let us know by contacting our DPO.

Sharing with your private medical insurer

Where the cost of your treatment and care is covered by insurance, we share your information with your insurer or the administrator of the applicable scheme of insurance. Both GenesisCare UK and your insurer are controllers of this personal information. This means that each of us individually may determine the means and the purpose of any processing of the information we hold.
Generally, we share information in order to allow each other to exercise its rights or comply with its obligations under the healthcare services arrangement we have in place, and in the case of the insurer, to manage claims and administer the schemes for insured members.
Specifically, your information may be used in the following shared activities:

The provision of clinical quality information
The pre-authorisation of treatment on your behalf
Invoicing for services provided
The notification of any serious incidents
Assisting and cooperating in the investigation of any member complaints
Allowing your insurer to inspect and audit our facilities
You may exercise your rights against either GenesisCare UK or your insurer where we are both controllers of the same information for the same processing purpose. Where we independently hold further information, or process information for purposes in addition to the shared purposes stated above, you should direct any communication concerning your rights to the applicable holder/processor.

Sharing with Public Health England

The law requires us to share data for public health reasons, for example to prevent the spread of infectious diseases or other diseases which threaten the health of the population. We will report the relevant information to local health protection team or Public Health England.

We make notifications to Public Health England and other statutory bodies in compliance with our legal obligations and where necessary to protect the vital interests of individuals.

This processing is necessary for reasons of public interest in the area of public health such as protecting against serious cross-border threats to health or ensuring high standards of quality and safety of health care on the basis of UK law.

Sharing with third parties

We may share your personal information with the third parties listed below for the purposes identified within this privacy notice:
A doctor, nurse, carer, pharmacist, and pathology and radiology staff involved in the analysis and reporting of diagnostic tests or any other healthcare professional involved in your treatment
Other members of support staff involved in the delivery of your care, like receptionists and medical secretaries
Anyone that you ask us to communicate with or provide as an emergency contact
NHS organisations
Other private sector healthcare providers
Your GP
Voluntary organisations providing on-going support
Ancillary service and support providers where you opt to accept those services, such as the GenesisCare Exercise Clinic, counsellors and therapists
Taxi providers where transport assistance for treatment is provided for insured patients
National and other professional research/audit programmes and registries, as identified under Purpose 3 above
Government bodies and local authority departments
Our regulators, like the Care Quality Commission
The police and other third parties where reasonably necessary for the prevention or detection of crime

Sharing data with the Private Healthcare Information Network (PHIN)

Genesis Care participate in initiatives to monitor safety and quality, to help ensure that patients are getting the best possible outcomes from their treatment and care. The Competition and Markets Authority Private Healthcare Market Investigation Order 2014 (“the Order”) established the Private Healthcare Information Network (“PHIN”), as an organisation who will monitor outcomes of patients who receive private treatment.

Healthcare providers providing private care are required by law to send PHIN details of each treatment episode. This will include personal data. By Article 21 of the Order, we are required to provide PHIN with information related to your treatment, including your:

• National Health Service (NHS) number, or in the case of patients from outside the UK, a suitable equivalent identifier e.g. passport number
• Your age
• Your gender
• Your ethnicity or race
• Your diagnosis (what you are receiving treatment for)
• Other data about your state of health
• The procedure you have undergone
• The date you came into hospital, and the date you left
• Your postcode.

PHIN also collect NHS patient data to enable it to consider all the treatment carried out by a particular consultant or provider, and to monitor outcomes, with a view to forming a complete and fair picture of the nature and quality of their services. For NHS patients, PHIN collect the same information as for private patients listed above, save that NHS numbers are not collected.

PHIN, like us, will apply the highest standards of confidentiality. Any information that is published by PHIN will always be in anonymised (unidentifiable) statistical form and will not be shared or analysed for any purpose other than those stated.

Further information about how PHIN uses information, including its Privacy Notice is available at www.phin.org.uk. We will be happy to print a copy for you if you prefer.

Our insurers
Debt collection agencies
Third parties to the extent required by law, regulation or court orders and statutory requests for information
Service providers we use to support our business. These processors are trusted partners that work with us and are authorised to use your personal information only as necessary to provide these services to us. We require these third parties to comply strictly with our instructions and data protection law and we ensure appropriate controls are in place. We enter into written contracts with all our processors
Our third party service providers such as auditors, lawyers, marketing agencies and tax advisers
Selected third parties in connection with any sale, transfer or disposal of our business. We may communicate with these third parties in a variety of ways including, but not limited to, email, post, fax and telephone.

We retain information in accordance with our legal obligations and national best practice. We ensure compliance through regular auditing and ensure information is securely disposed of when it has reached the end of its retention period. We implement data retention periods for different categories of personal data and/or different processing purposes, including where appropriate, archiving periods. We will only keep your personal information for as long as reasonably necessary in order to support patient care and continuity of care; support evidence-based clinical practice and to assist clinical and other audits; to support our legitimate business interests and to comply with our legal and regulatory requirements.

GenesisCare UK’s retention policy for most medical records is 30 years. A copy of the policy can be provided upon request.

GenesisCare UK is part of a global organisation. We (or third parties acting on our behalf) may store or process information that we collect about you in countries outside the UK. Information may be transferred, processed and stored outside the country where your information is collected, including to countries where the level of data protection may not be deemed adequate by the local legal or regulatory authority in the country of origin of the data. Where we make a transfer of your personal information outside of the UK we will take the required steps to ensure that your personal information is protected.
Generally: e.g. If your permanent address is outside the UK, or your treatment is continuing outside the UK, we may send details of your treatment to individuals specifically to promote your ongoing care.

We also process personal information within the GenesisCare group of companies for administrative and management purposes. The group companies are located in Spain and Australia. This processing is based on our own or a third party’s legitimate business interests and the following safeguards are in place to ensure that the data is securely protected:

the country to which we send the personal information may be approved by the European Commission, or
the recipient may have signed a data sharing agreement or contract based on “model contractual clauses” approved by the European Commission, obliging them to protect your personal information.
In other circumstances, the law may permit us to otherwise transfer your personal information outside the EEA. In all cases, however, any transfer of your personal information will be compliant with applicable data protection law. If you would like further information regarding the steps we take to safeguard your personal information when making international transfers, please contact the DPO using the details at the foot of this Privacy Notice.

Under data protection law you have a number of specific rights in relation to the personal information that we hold about you. These include rights to know what information we hold about you and how it is used. You may exercise these rights at any time by contacting us using the details set out at the top of this privacy notice and without adversely affecting your care.

We will not usually charge for handling a request to exercise your rights.
If we cannot comply with your request to exercise your rights we will usually tell you why.

There are some special rules about how these rights apply to health information as set out in legislation including the Data Protection Act as well as any secondary legislation which regulates the use of personal information.

If you make a large number of requests or it is clear that it is not reasonable for us to comply with a request then we do not have to respond. Alternatively, we can charge for responding.
1. The right to be informed – This is fulfilled through our privacy notices.
2. The right of access to your personal information – This includes details of the information we hold about you. You are usually entitled to a copy of the personal information we hold about you and details about how we use it. Your information will usually be provided to you in writing, unless otherwise requested. If you have made the request electronically (e.g. by email) the information will be provided to you by electronic means where possible. Please note that in some cases we may not be able to fully comply with your request, for example if your request involves the personal data of another person and it would not be fair to that person to provide it to you. The information will normally be provided free of charge and, unless there are grounds for extending the statutory deadline, the information will be provided to you within one month of receipt of your request. Please note we will generally also ask for confirmation of your identity and may need further information from you in order to locate the information, in which case the time period starts for providing the information to you starts from the date we have that detail.
3. The right to rectification – This enables you to require that incomplete information is completed, or incorrect information is corrected. This ensures your information is accurate and up-to-date. Unless there are grounds for extending the statutory deadline, we will respond within one month of receipt of a rectification request.
4. The right to erasure – This is also known as the right to be forgotten. In some circumstances, you have the right to request that we delete the personal information we hold about you. The broad principle underpinning this right is to enable you to request the deletion or removal of personal data where there is no compelling reason for its continued processing. If we have disclosed the personal data in question to third parties, we will inform them about the erasure of the personal data, unless it is impossible or involves disproportionate effort to do so. However, there are exceptions to this right and in certain circumstances we can refuse to delete the information in question.
For example, we do not have to comply with your request if:

it is necessary to keep your information for reasons of public interest, including public health,
for the purposes of establishing, exercising or defending legal claims,
where we have overriding legitimate business interests for processing the information,
where the processing is necessary for medical diagnosis; for the provision of health or social care; or for the management of health or social care systems or services and where the data is being processed by or under the responsibility of a professional subject to a legal obligation of professional secrecy (e.g. a health professional), or
for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes where the right is likely to render impossible or seriously impair the achievement of the research objectives.

If you make such a request and we comply with it, please be aware that we will retain a note of your name, the request made and the date we complied with it.
5. The right to restriction of processing – In some circumstances you have a right to ‘block’ or suppress processing of personal data. When processing is restricted, we are permitted to store the personal data, but not further process it other than in relation to the establishment, exercise or defence of legal claims or for reasons of important public interest. We are able to retain just enough information about you to ensure that the restriction is respected in future.
6. The right to data portability – Where you have provided the information to us, and where the processing is being carried out by automated means and based on your consent or pursuant to the performance of a contract with you, you have the right to obtain the information that GenesisCare UK processes about you and use it for your own purposes. This means you have the right to receive the personal information or where it is technically feasible, have the information transferred to an individual or organisation of your choice, and the information must be provided by us in an electronic format.
7. The right to object – you have the right to object to processing based on our legitimate business interests (including profiling), direct marketing (including profiling) and processing for purposes of scientific or historical research or statistical research purposes. The objection must be on grounds relating to your particular situation.
8. The right not to be subject to automated decisions – (i.e. decisions that are made about you by computer alone) that have a legal or other significant effect on you. GenesisCare UK does not carry out automated decision-making in relation to patients.. In the event that our policy in this respect changes, we shall update this privacy notice.
9. Your right to withdraw consent – In some cases to comply with data protection legislation we need your consent in order to use your personal information.
Where we rely on this, you have the right to withdraw your consent to our continuing and further use of your personal information. You can do this by contacting our DPO whose details are at the foot off this privacy notice.
10. Your right to complain to the Information Commissioners Office – You can complain to the Information Commissioner’s Office if you are unhappy with the way that we have dealt with a request from you to exercise any of these rights, or if you think we have not complied with our legal obligations. Whilst you are not obliged to do so, we would appreciate you making us aware of any issue prior to notifying the Information Commissioner’s Office and giving us the opportunity to respond. You can contact either the Information Governance Manager or the Data Protection Officer using the postal address at the top of this Privacy Notice.
More information can be obtained at:
Website: https://ico.org.uk/
Telephone: 0303 123 1113
Making a complaint will not affect any other legal rights or remedies that you have.

If you have any queries or would like to exercise your rights or to establish whether any rights apply to you, please speak with the GenesisCare Health Care Professional who is involved in your care.
You can also contact our Data Protection officer:
Email: DPO@genesiscare.co.uk or by writing to the address at the top of this privacy notice, marking your communication “Private and Confidential – FAO GenesisCare Data Protection Officer”
Telephone: 0808 1569 565

Updates to this Privacy Notice
We may update this Privacy Notice from time to time to ensure that it remains accurate. In the event that these changes result in any material difference to the manner in which we process your personal data then we will provide you with an updated copy of the Policy and signpost you to the specific changes.

Data Protection Impact Assessments are a process which help organisations to identify and minimise the data protection risks of data processing activities undertaken.

GenesisCare has completed Data Protection Impact Assessments for the following initiatives;