Reflections on 10 years with GenesisCare CAC, a prostate patient’s perspective.
At GenesisCare we recognise that one of the best ways of enhancing quality of care is to listen to and partner with people who have experienced cancer and its treatments.
We have the privilege of working with many amazing individuals through our Consumer Advisory Committee (CAC). One of these people – John – has now been with us 10 years, and we asked him to share his thoughts on being involved with the CAC, and the milestone he has reached.
Sometimes, the rocks life throws at you turn out to be diamonds.
This quote best sums my 10-year experience with the CAC; from a confused cancer patient to an optimistic member of the GenesisCare CAC; from the bottom of Maslow’s hierarchical table to the top, (well, almost).
Following a radical prostatectomy, radiation therapy and androgen deprivation therapy, GenesisCare invited me to join the CAC.
I recall my first CAC meeting and honestly, it was an epiphany, a defining moment; a step from the aimless ‘fog of cancer’ into participating in a clear plan to develop a better ‘Patient Experience’ and better outcomes; an issue close to my heart.
As a group of like-minded souls, the CAC developed 6 Strategic Priorities, advocating for improvement in the following areas:
- Consumers should be offered choices throughout their treatment journey especially when it comes to referrals
- Communications training including a focus on emotional intelligence is important
- Information availability – ensuring patients get the right information at the right time in their channel of choice
- Allied Health Support availability for all tumour streams is important
- Involve the Support Person – a second set of ears is important
- Aftercare – support adjusting to the new normal
Important headings that do not do justice to the extent of the ongoing work and outcomes of these activities.
What the CAC does
Important headings that do not do justice to the extent of the ongoing work and outcomes of these activities.
With guidance from these priorities, the activities I, and the other CAC members undertake include things such as:
- Reviewing and contributing to design and content of brochures and literature
- Recommendations on stability and safety of furniture
- Recommendations on floor plans for new centres
- Participation in Accreditation, such an expansive spectrum, in a truly collegiate environment.
- Participating in focus groups and visiting new centres to check feedback is incorporated
- Patient led education via panel discussions and speaking at events to share insights on the patient experience
- Reviewing safety and quality data to support continuous improvement efforts
I recall being surprised by the broad knowledge and skills of the CAC members and what a privilege it was to work with them, how every member contributed so generously with a total commitment to enhance the lives of GenesisCare staff and patients.
It’s no surprise to me that patent satisfaction ratings have increased to an impressive + 94 NPS nationally.
John Dowling, GenesisCare CAC Member
